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Jul 14, 2022Liked by Emma Stubbs

Ah, yes - trying to keep the doctors focused. It’s a full-time job. Don’t get me wrong, I will defend the NHS to my last breath, but you do have to keep prodding them….

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Dearest Emma,

Thanks for your post. Oh my dear....l am sorry to read of your trials and tribulations! What a lot of shit you get shovelled onto your plate. 😟 Actually we could get together and compare notes because l have quite a lot going on too, in the major shit department. I was in car crash aged 17...numerous operations, wheelchair bound twice, 2 knee replacements...etc and so forth. And it got me down at times, but generally l got on with life...studied, got great job at Amsterdam university as teacher-trainer (where l still do a few hours on line). But now parkinson's has really beaten the stuffing out of me...l find it so hard to deal with the symptoms, especially that it affects my gait. I often can hardly stand up or walk. That's so hard to take. Especially for a manic doer like me...like l used to be...like l was. I used to do 10 things at once and loved being active! But that's all past tense now.

I keep telling myself FOCUS ON THE POSITIVES! Wonderful husband, two beautiful kids, good friends, etc, etc. I've got lots to be grateful for..and l am grateful....it's just so bloody hard sometimes. Life is so, so hard now. I actually feel a bit guilty even admitting this...look at Ukraine! Oh my god...l think l'm having a hard time look at people there! But still....

Well this has helped me to write this down. I'm having a weepy evening so this has helped me focus. Thank you again for your input! You really make a difference, you know. We love you on Twitter and elsewhere! Sending positive vibes (if I can find em) ....sending love ❤️ Sarah

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